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Because the response is a protocol change, it belongs in a conversation with the provider supervising the taper
A three-year observational study of 115 EPP patients confirmed sustained benefit, with increased phototoxic burn tolerance and improved quality-of-life scores maintained across treatment cycles (Biolcati et al., 2020)
Blood glucose monitoring should continue frequently in the first few days, with doses adjusted according to readings and in consultation with the diabetes team
References: American Society of Anesthesiologists Task Force (2023): Practice Guidelines for Monitoring and Antagonism of Neuromuscular Blockade
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